My Game of Thrones Playlist to Get Me Through the Tough Days

I have just been through a year that had me shouting “seven hells” many times. My seven hells this year were PMDD, multiple pulmonary embolisms, anxiety, panic attacks, menopause, lyme disease and interstitial cystitis.

Game of Thrones, and other shows like it have helped keep me occupied and distracted through the pain and heartache that often accompanies chronic illness. I wrote an article about it last year. 

I am incredibly grateful to have made it through this year. I am still struggling and fighting, but am much better than last year. Tonight is the premiere of Game of Thrones and I can’t wait to watch it. Partly because I have been waiting a year and a half for the new season, and partly because it is a reminder that I made it through, I survived.

This morning while making pancakes for my family, it seemed like every song was reminding me of Game of Thrones. Some songs made me laugh, some made me think of certain GOT characters, and others made me feel excited and happy. So happy that I danced in my kitchen for the first time in over a year. I hope you enjoy my playlist, and I hope you dance too.

Here is my Game of Thrones playlist:

1. Another One Bites the Dust by Queen – who will bite the dust this season?
2. Every Rose Has Its Thorn by Poison – last season Margaery and Loris Tyrell were killed by Cersei. I’m sure that their grandmother Olenna will be all thorns this season.
3. Born to be Wild by Steppenwolf – The Wildlings are a huge part of GOT and will have a great role to play this season too as many battle will take place.
4. Back to Black by Amy Winehouse – Jon’s watch has ended and he won’t go back to black, but I’m sure the Night’s Watch will be by his side as they fight the Night King and his army of wights.
5. Pride by U2- this important song was of course written about MLK Jr., but it briefly made me think of the fictional character Ned Stark, who lived his life with honor and pride, and who many still fight for in the name of love.
6. The Rains of Castamere by The National- who could forget the Red Wedding or this amazing/haunting song. What will the Lannisters be up to this season? How many of us souls long to see/hear what they will do?
7. Burden In My Hand by Soundgarden – this song reminds me of Tyrion. He is now hand of the Queen, how will he handle this honor and burden? Will he rise to the occasion once they reach the sands of Dragonstone, or will he drown in alcohol and fall to pieces once again?
8. Dire Wolf by The Grateful Dead – Will Ghost return? Will Arya be reunited with Nymeria? Which sinners and bad guys will the Stark wolves attack? Many have it coming to them.
9. Hound Dog by Elvis Presley – He isn’t high class, but I’m so glad the Hound is back! He prefers chicken to rabbits and has been a secret friend of the Starks. F*ck the king, let’s see what he does this season!
10. Witchy Woman by The Eagles – Cersei was born with a silver spoon in her mouth, and now she has suffered the witches prophecy. Gold are now her children’s shrouds, will her little brother now choke her to death? We shall see.
11. Ain’t No Mountain High Enough by Marvin Gaye & Tammi Terrell – Nothing will stop The Mountain from protecting Cersei, not the Trident river or the Vale of Arryn, and nothing will stop me from watching the Cleganebowl if it happens this season!
12. Smoke On The Water by Deep Purple – this song reminds me of the Greyjoys since Pyke is always misty and smoky looking. It also reminds me of The Battle of Blackwater, and other battles to come. What will be Theon and Yara’s fate? What great battles on the sea lie ahead?
13. Something Wild by Lindsey Stirling – Dany has a big heart and has become wild and powerful, and she is being called home. While her dragons chase the sky, the lights are blinding and her quest is binding. Her maps and battle lines are drawn, will she prevail and ultimately sit on the throne?
14. Simple Man by Lynyrd Skynyrd – I’m on Team Stark and Jon Snow is my favorite. He may be a simple man but he has learned something, and does not live for rich mans gold. He follows his heart and knows what’s in his soul. I hope it leads him to great things and happiness.

This past year I said not today to the god of death many times. I hope you say not today too, and I hope he listens.

Winter is here. Let’s all hope it’s not a long one.

Kathy ❤

Poetologie

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Nothing’s Gonna Change Our World…Unless We Do

‘I read the news today…oh boy’ – Manchester looks like its been at war.  ‘A crowd of people stood and stared,’ they’d seen terrorism before. Beatles lyrics are currently racing around my head, music is my comfort today.

Twenty-two people killed, including children as young as eight years old. More than fifty injured. The distressing news just keeps coming. It’s getting so hard to hide my sadness and tears from my children.

How do I protect them from the news? How do I protect them from this increasingly dangerous world?

Images of the Newtown tragedy flash through my brain, as I see a mother cry for her missing daughter. People/children were once again going about their day. People/children were once again murdered.

With no warning. With no reason. With no emotion.

They are now gone. Their families are still trying to find them or find out if they are among the victims. Their families all have our sympathy, our thoughts, and our hearts. We hug our own children safe in the knowledge that they are okay today.

But what about tomorrow?

What new tragedies await all of us?

Today a bridge of pain connects us to Manchester, just like many bridges before. This pain seems unending in recent years. This pain is heartbreaking.

I wish it would stop.

I tell my anxious daughter a few details of the bombing, because I know that she will find out about it at school. I want her to hear my words first. I want her to see my face when I say this is a horrible tragedy, but this is far away, it will not directly affect you.

I never spoke to her about how I was in New York City on 9/11. How I walked for miles among traumatized ashen people. I never told her that her Aunt lost her best friend in the bombing of Pan Am 103, and worked in Tower One of the World Trade Center. I never told her how close to home tragedy has struck. But I have said those words of comfort to her before, about Newtown and a few other tragedies, because I needed to calm her fears.

My words which usually speak passionate truths were carefully edited, carefully cooled down to help her deal with the news. To help her deal with the fact that the safe little world in which she currently exists is shrinking. With each bomb blast, shooting or death from cold hands she will be unwound. Her idea of safety is slowly being liquidated to pay off the debt of her survival. Her artistic brush is forced to paint a picture of a world in frequent mourning, over mornings such as these.

When I was younger I frequently watched the news with my mom. I am not able to do this with my daughter, for it is too often filled with tragic headlines and scary events.

So instead I shield her from as much devastation as I can, surround her with love and comfortable things, and pray she will gain the strength to get through such difficult times.

I let her see me write blogs and poetry often, I tell her that getting out our emotions in a positive way is a blessing and a necessity. She hears the tap tap of the keyboard and the click click of the mouse as I pour out my feelings. I hope she always remembers these sounds. The sounds of subsistence, the sounds that help me get through my toughest times.

I am glad that she has her art to ease her mind. I hope that it always does. I hope that the stroke of her paintbrush can help her survive, thrive and put some color into this often gloomy world.

I often tell her that we should always help others when we are able to. That so many people need assistance, and that there is nothing wrong with asking for it. I tell her that it’s okay to pause her world in order to help someone in need.

After tragedies I feel helpless, sorrowful and weak. I wonder what kind of world we are leaving our children. But watching the kindness of strangers, bystanders and everyday heroes always lifts me up. These people make it possible to see the light in the darkness, the way through the pain.

I want to be one of these people. I am trying to teach my children to be like these people. The light-bringers, the change-makers, the bastions of hope. People who see others as equals and worthy of compassion. People who feel it is our duty as citizens to help lift others up, because they know we will all fall down at some point in our lives.

Manchester needs us now. The world needs us now. We must take a long look in the mirror of truth, and put an end to our apathy. I have been looking in this mirror for years, I am ready to make a difference. I realize that it all starts with me.

And as the tears flow from the sights and sounds of a city that’s an hours train ride from Liverpool, I know that nothing’s gonna change our world – unless we do.

Kathy ❤

Poetologie

 

In This Time of Darkness, Send In the Snow

I am a snowflake, I stand tall and proud. I’ve fallen to the ground, from an ominous cloud. I’m cold on arrival, but I melt when I hear. The drums of injustice, pounding very near.

The world seems so much darker since Donald Trump was sworn in on January 20, 2017. His first 80 days in office have been a disaster, and have incited many people to protest often. He continues to harm and insult countless individuals and communities, just like he did on the campaign trail. Some were anticipating that he’d magically change once he took the oath of office, but I never had that hope. I saw what he was, because I listened to who he told us he was. Many didn’t listen close enough or believe it. They just chose a few things they liked about him, and dismissed all the rest. Some of these people are regretting their decision to vote for him, but not many of his core supporters who seem to stick by him no matter the cost. Even through the threat of nuclear war.

That makes me very sad. Sad that people support such a hateful man, who surrounds himself with cruel, divisive people. Sad that he was elected even though Hillary Clinton had almost three million more votes. Sad that the world’s opinion of the United States has now changed. Sad that I cannot let my own children listen to their President speak. I will not let them hear his hateful rhetoric. I will play back old speeches of Barack Obama so that they can hear the words of a wonderful, eloquent man. An intelligent, devoted family man whom I, and many citizens, loved and will always love. He will always be my President.

I will teach them about compassion, and the difference between legislation that is created to hurt us, and legislation that is created to help us. I will show them how people’s actions speak louder than their words. I will show them all the progress that was made during Obama’s Presidency. I will show them how the Trump Administration is desperately trying to erase all of that progress, and target certain people/communities with a big smile on their face.

I will teach them the value of voting in every single election.

I will show them what love is, and that helping people is an essential part of being human. I will teach them not to judge people by the color of their skin, or by what religion they follow, or by the amount of money they have. I will teach them that we are all equal and should be treated that way.

I will teach them that snowflakes are beautiful, and to be called one is not an insult but a compliment. It means that you care about the world and all of those in it, not just yourself or people like you. It means that you will speak up when necessary, and won’t let your kindhearted ideals get trampled to the ground.

When I heard about the Muslim Ban and saw all the chaos and inhumanity at the airports months ago, I cried. I cried for all those affected, for their families, for our country, and for my children.

I was so happy that they were born while Obama was President. The world seemed so much better, safer and happier. I know that some terrible things still happened, but having Obama at the helm was very comforting. He strived for peace, equality and the greater good. He was a kind and decent man, and when he spoke I got chills down my spine. I knew that I was witnessing greatness. I feel sorry for those that didn’t.

I do believe some people are coming to that conclusion now, and are realizing that harmless emails were actually a diversion from a sinister plot to make America fascist not great. Many people made a mistake by not voting, or by voting for the wrong candidate. Now our country is in great peril. Now a traitorous egomaniac is at the helm.

I believe Michelle Obama said it best when she spoke to Oprah “we are feeling what not having hope feels like.”

I know exactly what she meant, and that is the feeling I have had since the election. I am left with a giant hole in my heart now, and a feeling of dread that I have never felt before. I am scared for my country. I do not support Trump as President and I never will. That is a hard thing to admit and have to deal with, for I consider myself a very patriotic person. I love this country. But, I love it so much that I will not support those who try to destroy it. Things are not normal right now. I have always watched every Inauguration, and wished every President well. Not this time. This administration is like no other. The hate, intolerance, discrimination, and fear it perpetuates is unacceptable.

That is why I am a snowflake.

I was born with a lot of compassion, even though I was not treated well for many years. I was always able to try to put myself in others shoes. I cried easily at the sight of pain or injustice. I always wanted to help, though I wasn’t always able to.

Some are not born with a lot of compassion, but it can be taught, it can be practiced, it can be developed. It can be learned by watching others who exhibit it. It will not be shown during this administration, that is why I hope it doesn’t last long. I hope it doesn’t have to time to destroy people’s lives, jobs, families, healthcare, and the environment.

I don’t want to watch the country I love burn. I want the beauty that Obama and those before him created to remain.

I was very sad on January 20th. I am still very sad about what is going on, and about how Trump is trying to move our country quickly toward fascism. But on January 21st, during The Women’s March on Washington, I found hope again. Hope came in the form of millions of snowflakes wearing pink hats. I could not get enough of the coverage, the speeches, the signs, the women and men who marched for a better, more fair and diverse world. A world I believe in. A world I want to live in.

Though I live close to Washington D.C. I could not march due to my health, but I felt like I was right there with them. I found the light I was looking for, I found my fellow snowflakes.

Many conservatives use the term snowflake in a derogatory manner. I don’t care though, I am proud to be one. I am proud that I, and so many others, care about our fellow citizens, and about our world. I am proud that we want to help others, and to make the world a better place for our children, and for everyone. We will march, protest, call our representatives until the cows come home, because we know that many things in life are worth fighting for, and our country is one of them.

I am so proud that so many people in our country, and around the world, are standing up to the injustice that surrounds us. It gives me hope, it helps me sleep at night. I am able to look in the mirror knowing that I did my best to try to be a good person, and to make a difference, no matter how small.

I don’t know how our new President, or many of his followers look in the mirror at night. I don’t know how they post about how glad they are that the refugee children that have been turned away have nowhere safe to go now, then kiss their own children good night. I don’t know how they say “build the wall,” with such glee, and turn their heads while other’s are bullied and beaten because of such hateful rhetoric. I don’t know how they cried while Angels were shot down in Newtown, but cheer when Trump talks about removing gun-free zones at schools, and while he gave a Sandy Hook denier a seat in the White House Press Room. They looked away while the people of Flint had no drinking water, and voted for someone who will allow all of our water to be polluted. They believe all of the alternative facts and have no idea what the truth is anymore. What examples are they setting for their children?

I will follow the marchers, the scientists, the environmentalists, the civil rights activists, those who fight injustice, and those who dream of a brighter future for all of us. Those who realize that the swamp has not been drained, it has been filled with unscrupulous billionaires who are okay with following a tyrant who is beholden to Russian interests. Money is their God, and their savior Jesus, is just a poor immigrant.

I am glad that the world is watching. I am glad that those who were banned from our country know that the majority of Americans do not agree. I am glad that most of us do not agree with the deportations of Dreamers and non-violent immigrants. I am glad that they see that most of us care. That we will keep protesting and fighting for them, and for what is right. Fighting for the heart and soul of the nation we love.

They say a storm is coming. It is a storm of millions of voices starting to rise. Winter is here. A winter that could last many years.

We are the winter. We are the snowflakes. We will fight injustice. We will spread love. We are indivisible. We are stronger together.

We will try to replace all of the pain that will be created, and all of the woe that we feel, with a beautiful bright layer of fresh fallen snow.

And as we march, we will leave millions of footprints in the snow that will never melt.

snowflakepoem

The Phone Call

On September 25, 2016 I was diagnosed with Multiple Bilateral Pulmonary Emboli. It was one of the scariest days of my life. I have been suffering from many chronic illnesses for twenty years now, but I was never given a life-threatening diagnosis before. I have faced many rough days, and have spent many nights awake with fear, but this hit me the hardest. I didn’t know how I was going to deal with this information.

I usually work through difficult situations by writing blogs and poetry. This was new territory for me though. I never had to write about a life-threatening situation that I was in the middle of. This was not fiction, or a distant memory, this was happening now, and writing about it would make it all too real. I had to try to distance myself from it in order to survive. I had to try to forget that there are currently blood clots all over my lungs which could kill me in an instant. Which could take me away from my family, this beautiful Earth, and all that I love. This time was different. I tried to distract myself, I tried to keep busy, I tried to rest, I fought to get through the day.

I am sorry to all of you who are currently facing life-threatening diseases or illnesses. I now know how you feel in my own way in regards to what I am facing. I can’t know exactly how you feel or what you are going through, but I wish you hope, strength and lots of love.

I was told that I would have to take blood thinners for up to six months. I am extremely sensitive to medications and was not able to tolerate the pill forms of Eliquis or Coumadin. I was able to tolerate Lovenox in the hospital so my hematologist agreed to let me take it though it wasn’t the normal protocol.

My husband who is a registered nurse injected me twice daily with this life saving medication. It prevents the existing clots from getting bigger, and it prevents new clots from being formed. The shots in the stomach are painful, and have left my entire abdomen bruised and tender. I bruise and bleed very easily now and have to avoid doing anything that could result in bad injury, especially to the head. Some people do fine on the blood thinners, but since I’m so sensitive it has been very difficult for me to stay on them. I have asthma, Chronic Lyme Disease and anxiety and this medication has made all of these conditions worse. I feel strange, dizzy, nauseous and not like myself. My life has been put on hold these past four and a half months and I haven’t been able to enjoy much. I’ve barely gone anywhere besides to take my children to school.

I have not been able to write much due to my anxiety, and the fact that I feel like I can’t put into words what I’m going through until it’s over. I’m so paralyzed with fear, that I can’t think clearly. I have many trapped words in my head waiting to be out of their prison. I look forward to the day when they flow freely, dancing around the page, unencumbered, raw and beautiful.

Though I’m so grateful and lucky to be alive, I can’t wait to truly live again.

And that brings me to the phone call.

Yesterday, I had a CT  Lung Angiogram with contrast. This test will allow the radiologist to see if all of my blood clots are gone. This test will let me know whether or not I can have my life back. This test will let me know if I can breathe again, with less anxiety, and more joy. With more happiness and fun times for my family, a family I have woefully neglected for a very long time. I’ve been sad, scared and angry for too long. I pray I get the chance to make it up to them.

My hematologist is supposed to be calling me today with the results. I jump each time the phone rings. My heart starts beating very rapidly like the Tell Tale Heart. Will I be free, or left with its maddening heartbeat?

And so I wait, and in between taking and picking up my children from school, I will hope, I will pray, I will try to believe that I deserve some good news.

Let’s hope it comes soon.

I Am No One. I Am Someone. My Story of Domestic Violence

Many years ago an ex-boyfriend drove me deep into the woods of a small Connecticut town. It was a beautiful sunny day, and there was a very scenic view. I was enjoying the ride until he said to me “if you ever lie to me or cheat on me, I will bury your body in these woods.”

He then added “and no one will ever find you.”

He spoke these words so clearly and matter-of-factly, as if he had been planning this for months. He was totally serious and made sure I knew it. It was at the point that I knew I would never get out of this relationship alive.

I was dating a man similar to my violent abusive father, the cycle continued. Just like Julia Roberts’ character in “Sleeping With the Enemy,” I had to make a plan and gather the strength and courage to leave him.

We had been dating for a year at the time, and there were many signs of abuse such as yelling at me constantly, pushing, punching, grabbing me so hard that my arms were black and blue, throwing objects at me, threatening me and putting me down often. I slowly recognized these signs of abuse, but was stuck, torn apart, and felt like I had nowhere else to go at the time. Plus, I really felt like I could change him by smothering him with love and kindness. But that never works, people only change if they want to and receive the necessary help that they desperately need.

At the time I was no one. I was just a carpet for others to walk all over. I had no confidence, I had no inner strength, I had no soul. I was just walking down an endless deep dark path, and I never felt so alone.

Due to an abusive childhood, I thought that it was normal to be treated the way my ex treated me for awhile. I thought I deserved it. And like many abuse victims, I thought I could change my boyfriend into a loving man. I believed him each time he said he’d never hit me again, though the look of satisfaction on his face said otherwise.

I would look at other couples who were in love, and wish I was in love with someone kind. Instead I was dating a monster. This monster was very good looking and charming. He fooled many people. He made a fool out of me on many occasions. Nothing I ever did was good enough, nothing I did was ever right. I was constantly walking on eggshells, trying to please him so that I could have some peace.

But, I was fooling myself, for there is never any peace in an abusive relationship, and there never will be. According to the National Coalition Against Domestic Violence – “on average, nearly 20 people per minute are physically abused by an intimate partner in the United States. During one year, this equates to more than 10 million women and men.”

I started secretly seeing a psychologist on my lunch breaks in Manhattan. The walks to these appointments were terrifying, but after each one I felt a bit of a release. I was finally able to tell someone, I finally showed my bruises to someone. The look on my psychologists face said it all, and she slowly helped me gain the courage to leave. All of the shame and fear I had been feeling came pouring out, like an endless ball of pain. It was finally unraveling, I could finally breathe again and dream that happiness would someday be within my reach.

Soon after, I left my boyfriend after a heated fight. I ran into some policemen on the walk to my mom’s house, and they escorted me the rest of the way. I did not tell them what had happened.

I had run out of the house, fearing for my life, and left with only the shirt on my back. I had no other possessions, but I had my life and I had my dignity. My family took care of me until I healed, and figured out what to do. I finally told them and my friends what I had been enduring. My ex tried to keep me away from these friends, but once I told them they said to run and never look back.

I was weak and did look back a few times and called my ex out of loneliness and desperation. We even got back together for a few weeks. But the same cycle of violence occurred and we broke up for good soon after. I was lucky that he convinced himself that it was not worth it, and I never saw him again.

I continued counseling for a few years which helped me to figure out a plan. My plan was to be alone for a long time until I learned to really like myself for the first time in my life. I learned to embrace the quiet and treasure my solitude. My hobbies of writing poetry, rollerblading, kayaking, and photography helped save my life. These hobbies filled my time and were my constant companions.

They would never hurt me. They would only enrich my life and help me grow.

These hobbies built up my body and my spirit, and they allowed me to move forward.

Please be aware of all of the signs of verbal and physical abuse. Teach them to your children. Let them know that they cannot treat people this way, and that they should never allow anyone to treat them this way. It is not acceptable to abuse others.

It is true that love and relationships can be hard work. They can have many ups and downs. They require lots of patience and lots of respect. They should, however, be mostly filled with love and happy memories. It should not feel like hard work all the time. You should not change who you are to be with someone.

You should never accept anyone hitting you.

If they do, quietly walk away. Ask others for the support you need and deserve.

You are not a punching bag.

And whether the abuse is physical or verbal, you do not have to stay.

Make a plan, and leave right away or as soon as you can.

It is much better to be alone and alive, than it is to be abused.

Someday, when you are removed from your horrible situation, you will learn from it. You will learn to like yourself again. You will grow and blossom into the amazing human being that you are. You will live again. You will find happiness. Many have walked in these same footsteps. I was one of them. Let us lead the way. You are not alone.

Just keep saying these words over and over until you believe them. Then go ahead and take your life back and learn to live it!

I am someone. I am good. I am compassionate. I am special. I have great worth, and no one can take that away from me. I will unravel this ball of pain that consumes me. I will transform it into a great ball of light. This light will brighten my world. It will lead the way to better things. It will help me move on and be happy. It will help me love again, and share that love with the world. Life is a circle, not a cycle. My cycle of abuse is over. I will not let it overtake me again. I am finally free….

Kathy ❤

Poetologie

If you ever need help you can use the following resources:

  • If you are in immediate danger, call 9-1-1.
  • For anonymous, confidential help, 24/7, please call the National Domestic Violence Hotline at 1-800-799-7233 (SAFE) or  1-800-787-3224
  • http://www.ncadv.org/

 

 

Yes, Virginia…We Need Stronger Gun Laws

Virginia, throughout America your little friends are crying. They have been affected by their parents, and other Americans, cynicism, divisiveness and apathy. They know the scary things which they see on the news. They comprehend the violence occurring every day on their streets. Their minds are not little. They see the bloodshed. They feel the loss of their innocence. In their great big worlds dreams are being replaced by fear, art is being replaced by a picture of their friends mother crying at their child’s burial. They are not too young to grasp the fact that their classroom closets are now our inept way to cope with the reality of gun violence in our nation.

Yes, Virginia there is a need for stronger gun laws. Those of us who are willing to put politics aside and march toward a safer, more peaceful world know this. Your world should be filled with joy and fireflies, sprinklers and bike rides, carnivals and endless laughter. We should always put you first, and do what we can to protect you from harm. So that your world will be like an infinite poem, one that provides a rhyme and reason for your beautiful life.

We should not turn a blind eye each time we hear a story of another child killed by a gun not stored safely, or by a person intent on doing harm to school children or innocent bystanders. Over thirty thousand beams of light are extinguished each year by a gun. This light should not be forgotten, these flames should continue to burn in each one of us.

Not believe in gun laws? You might as well not believe in the pursuit of happiness which our forefathers fought so bravely for. So many people are fighting every single day for you and your happiness Virginia. They walk the streets, they make phone calls, they attend tough meetings. You may not see them, but they are there just as sure as the princesses that fill your dreams. Many of us choose not to see these unsung heroes, but many of us do and march to the beat of the same drum.

You can take apart this drum and see the rim, tension rods and tuning screws, but you cannot see the depth of the heart that beats for you and for all Americans. These hearts are strong, these hearts are united, these hearts want you and all children/people to be given a chance to lead a full, wonderful life. They believe in stronger gun laws and background checks because they work and save lives, not because of a secret agenda. Their agenda is pain. Their agenda is a mother’s tears. They want these tears to stop flowing. They can see the reality of the situation, but they remain hopeful. They want to fill your world with this hope, and they want you to revel in the beauty of this nation. The beauty of friendship, the beauty of community, the beauty of love.

No gun laws? That was never the intention of our forefathers, for they knew we must create, amend and uphold the laws of our land so that we can all be safer and free. Many years from now, I hope you are able to look back on a wonderful childhood, free from the fear and constraints of a violent society.

We have the ability to make that happen. We are the adults, and yes you should believe in us. You should believe in childhood fantasies and fairy tales. You should walk the streets with a smile on your face, and lots of love in your heart. You should believe that we will keep fighting for you and never let you down.

Kathy ❤

Poetologie

* This blog post is inspired by, and follows the format of the famous editorial “Is There a Santa Claus?” which was printed on September 21, 1897 in The New York Sun

 

Love and Scrabble: My Struggle with Chronic Illness

As I sit here playing Scrabble with my daughter, I am thinking of all the time that I have wasted. Quality time that I could have been spending with her, my son and my husband.

Time spent fighting Lyme Disease and Pre Menstrual Dysphoric Disorder, among other chronic illnesses.

I am surrounded by lettered tiles, a smiling daughter, and much regret. The cardboard box says “when you play games, everyone wins.” I have not been winning the last three years, I have barely been in the game. But, I will fight my heart out to get back into the game. I will fight my heart out to be there for my family once again.

As I was struggling with Lyme Disease, I overlooked the damage that PMDD was doing to my body and brain. I had not taken my diagnosis seriously, and blamed all of my symptoms on Lyme Disease because Lyme Disease has many intolerable symptoms. What I did not realize was that most of the rage, imbalance and panic that I felt was caused by PMDD.

As soon as I learned that the only cure for PMDD was surgery, I signed up. I had a hysterectomy and salpingo-oophorectomy. This decision was not taken lightly, and anyone considering it has to consult with many doctors, try a few other treatments, and do an enormous amount of research. There are many risk factors and no guarantees that the patient will feel better, but I was ready to take my chances.

My lowest point was being a prisoner in my house, in my own body. Grasping onto the couch for dear life as the anxiety and panic consumed me. Seeing my kids but not being able to play with or enjoy them. Letting them down constantly. Not wanting to be stuck in that prison anymore. Oh how I love my family, that’s why I kept going. That’s why I had surgery as soon as I could. That feeling of doom is gone, the towering prison walls are gone. Only anxiety remains. I will overcome that too.

I feel more hopeful now. The board is full of endless possibilities. Words float around like jubilation, contentment, and survival. Glorious text that I gleefully place on our Scrabble board, glad that it supplants words like despair, indignation and trepidation.

My daughter’s eyes sparkle as she looks at me. Oh how I have missed that look. She is pleased to be able to spend time with her Mama again. All these years she has needed me, I was unable to truly be there for her. She never gave up hope though. She never stopped loving me.

She laughs as she spells the word bunny. Her many freckles frame her beautiful face. I will notice these freckles more now, I will try to make up for lost time.

So many thoughts enter my mind as I sit in our kitchen. What words will I now put on the table? I will choose them more carefully. I will teach my children that words matter. That they are a reflection of who we are. That they can hurt, help or heal.

I will work hard to gain my strength back, to use my words to help bring my family closer, to help others who may need to hear them.

I have a long way to go, but I’m glad that I’m going in the right direction. The Scrabble board is in use again. My mind and body are regenerating. The words will keep flowing.

My life continues. The love continues….

Kathy ❤

Poetolgie

 

 

 

A Letter to My Children on Mother’s Day

I will always treasure every moment
I spent with you dear child
you are my baby and will always be
through many moonlight miles

I hope your days are always filled
with more happiness than you can accrue
and when I am no longer here
the moonbeams will send my love to you

Dear Children,

While you were in my belly I thought a lot about being a perfect mother. I dreamed of you under a starry sky and a bright full moon. I felt like I had been waiting my whole life for you, and I wanted to make sure you were happy. I pictured being Martha Stewart in the kitchen, having a house worthy of Better Homes & Garden magazine, and endless days of laughter, fireflies and fun.

When you arrived I knew the true meaning of love, and wanted to fulfill these goals more than anything.

What I didn’t know then was that I would not accomplish many of these objectives due to Chronic Illness, Lyme Disease and Anxiety. These dreams slowly drifted away as the pain increased, my brain got more foggy, and my strength diminished.

Though I knew that there was no such thing as a perfect mother, I wanted to be as close to perfection as possible. I set the bar very high, and I could never come close to that goal.

You are my little moonbeams, and I prayed to the moon for your forgiveness.

I read you books when I could, played games when I could, and took you to the park when I was able. I walked many moonlight miles with you, I would walk anywhere with you. I cooked you nice meals, and baked awesome allergy friendly treats as often as possible. I watched the sprinkles fall from your fingers, just like I watched the rapid passage of time.

I thought that despite my health issues, life sure is very sweet.

I would destroy the bar I set, and set a new one. This one would focus more on love than longevity, and more on feelings than frequency.

I would learn to enjoy whatever time we had together, and make memories that would last us a lifetime.

I knew that no matter what, I had already accomplished my greatest goal, bringing two incredible children into the world.

You are incredible.

Never forget that.

You show compassion when others are in pain, you hold your little umbrellas up to me to shelter me from the rain. You sit at the buddy bench with those who need a friend, you live your lives with joy and kindness that certainly does transcend. You help plant our garden with seeds of hope, you help me get by, you help me cope. You are as peaceful as little doves, have taught me the meaning of unconditional love. You are more special to me than words can say, and I will love you til’ my dying day.

I am so blessed to have you in my life.

I am sorry for my shortcomings, or for anything you have missed due to my illnesses and anxiety.

But I am not sorry that you failed to miss what the meaning of life is.

Being kind and true to yourself. Being able to put others in need before yourself from time to time. Spending as much time as possible with those you love. Never taking them for granted, never forgetting to tell them how much you care.  Love yourself, others and the environment. Never stop growing your mind, your heart, your soul.

I am so proud of you.

I am so happy that I get to spend Mother’s Day with you.

There is no one else I’d rather be with. There is no one else like you.

Thank you for all of the joy you have given me, and continue to bring to my life. I hope all that joy comes back to you two-fold.

I hope you will always remember what I have taught you.

Always live your life to the fullest.

Always remember how much I love you.

Always remember that that light that shines within you is greater than the light of any moon.

 

 

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Today I’ll Take Care of You: A Letter to My Family

It is a quiet Saturday morning in April. Rain falls softly outside, and the streets are covered with cherry blossom petals. Though all of you are sick with a virus, it is a good day.

Today I am able to take care of you for a change. Today I feel okay. I have the strength to make you some eggs, toast and tea. I’ll bring them to you in bed, and plant a gentle kiss on your forehead.

Today I will make some of my homemade tomato sauce that you love, and its magnificent aroma will fill the air. I will bake those nut-free vanilla cupcakes that you’ve been asking me to make for months. We will play Scrabble for hours since my brain is less foggy. We will cozy up on the couch and watch a great family movie.

I will be the mom/wife that I want to be every single day. The mom/wife that is not too sick to care for you, to cook for you, to be present for you, to explore the world with you. I will cherish this day, and pray for many more like it.

My many chronic conditions include Asthma, Lyme Disease, Fibromyalgia, Interstitial Cystitis, Endometriosis, Anxiety and Pre Menstrual Dysmorphic Disorder.

Any one of these conditions are enough to make life difficult to manage and cope with, but together they are often debilitating.

You see me wince with pain, so you help dry my tears. You see me tired and hungry so you bring me food. You see me unable to do chores so you help do them for me. You see me suffer, so you bring me my medicine.

What you don’t realize is that you provide the best medicine in the world. The medicine I need the most.

Love.

You provide it in daily doses of hugs, teaspoons of tenderness, and soothing scripts.

There is no better prescription for happiness. You make the tough days tolerable, the painful days palatable, and the crazy days comforting.

You are there for it all, and help me get through the unavoidable rain. You rarely complain, you just want to help me feel better.

I appreciate every single thing you do for me. I appreciate all of the sacrifices you make. I appreciate your constant companionship.

It is nice to not have to feel so alone in this long journey of chronic illness. In this long journey of life.

It is nice to have all of you by my side. My sweet family. I love you more than words can say.

Today I’ll take care of you.

Today I promise to keep fighting to get better so that we will have many more days together in sickness and in health.

Today it is my turn to provide you with some comfort, warmth and unconditional love.

Rest your weary heads.

Mommy is here.

And I will be here until the last cherry blossom petals wash away.

 

 

 

 

 

A Letter To My Kind Hair Stylist Who Eased My Anxiety

To My Kind Hair Stylist:

When I entered the salon you worked at I was filled with anxiety for no reason. It’s just something I deal with daily. My generalized anxiety has become much worse since I developed Lyme Disease. Regular daily chores and trips to the grocery store/hair salon/mall/restaurants fill me with anxiety. I wish I didn’t have to feel this way all of the time, but for now I do. I’m working hard to overcome it, but that could take many years.

And so I made myself walk into your salon. I desperately needed a nice haircut, and I took a deep calming breath and hoped for the best. The salon was beautiful, and had a nice relaxing atmosphere. The staff were all really nice and brought you out to meet me.

There was something about you that immediately put me at ease, and that is no small feat. You had a big smile on your face and a nice, tranquil demeanor.

You brought me to your chair and asked me a few questions about how I wanted my hair cut. I answered your questions quickly as I was still nervous. Then you proceeded to wash my hair. The scalp massage really helped me to relax. I felt okay as I walked back to your chair.

I had to immediately bring up a few health issues, as my Lyme Disease makes me more sensitive to chemicals, and I have to make sure there are no nut or shellfish containing products used due to me and my son’s food allergies.

You did not roll your eyes at all I told you. You kindly and sincerely answered all of my questions, and even checked and rechecked the product labels to make sure they were safe.

Even though you were very young, you had a certain patience and understanding about you that usually comes with age.

Whatever topic I brought up, you offered words of wisdom well beyond your years. You were sympathetic, perceptive, and very knowledgeable.

I was so grateful to be able to loosen up and be distracted enough to actually enjoy my haircut for the first time in years. You have no idea how much that means to me.

After talking to you for awhile you brought up the fact that you had recently donated your kidney to a boy you had been dating for only a year. Then it all made sense.

You aren’t just a thoughtful young woman. You aren’t just a patient woman. You are an Angel on Earth.

You had actually saved someone’s life, and I was grateful to be in your peaceful presence.

You gave off an air of acknowledgement, because you’ve already been through so much.

You were able to put me at ease, because you understood struggle.

You were able to show much kindness, because you know exactly what it means to walk a tough road.

You were also able to give me the best haircut I’ve had in years, even though you are just beginning your career.

When my haircut was through, you gave me a big hug. Not a forced one, a real genuine hug from your heart. That had never happened before in my 40 plus years of getting haircuts.

It was very sweet, and special, just like you are.

I believe deeply in thanking people who have shown me or my family kindness. I believe in thanking people who make my day, or go out of their way to help others.

Thank you for putting me at ease and making an ordinary trip to the salon an extraordinary one.

You are very good at your job and I wish you all the success in the world.

I also wish good health to you and your boyfriend. I hope the special bond that exists between the two of you lasts forever.

I will be back for more haircuts and will refer my friends and family too.

I have never thought of writing a letter/blog to thank a hair stylist before. That’s because I never met one like you.

I am altering the words of Sir Elton John to say:

My gift is my blog, and this one’s for you….