Thank You to the Friends Who Met Me After Chronic Illness

To the friends who have met me after chronic illness,

You may have met me through my kids. You may have met me in the neighborhood. But that doesn’t matter, what matters is that you met me after I became chronically ill- but you still chose to become my friend.

You weren’t put off by my disheveled looks, my wrinkled clothes, my messy house, my tired eyes, my seldom seen smiles. You didn’t judge me, look at me strangely or differently, or walk away.

You gave me a chance because you are a special person. One who can see beyond appearances and chaos, and focus on what is important.

People. Helping others. Being a good person and friend.

You met me after Lyme Disease and Premenstrual Dysphoric Disorder took over part of my brain and made me more anxious, confused and irritable. You met me after I was recovering from surgery and going through surgical menopause. You still supported me after I learned that I had multiple pulmonary embolisms, and didn’t know whether or not I would survive. You met me when I could barely take care of my children, let alone myself.

But, you still stuck around. You still gave me a chance. You still cared no matter what.

You didn’t stop coming around when I could not even make it to the door because I was too anxious to answer it. You didn’t stop calling or texting me to see if I needed anything, even though I could never return the favor. You didn’t stop asking me to do things even though you knew that I couldn’t for quite awhile.

You helped get my young son to school each and every day so that he wouldn’t miss out on anything. You made sure he was safe and well cared for. You made sure he had fun whenever he was with you and your children. You made sure my eleven year old daughter was also okay and had what she needed to get through the many crises we faced these past 2 years.

You never complained, you were just there. Right where I needed you, right when I needed you. You never asked for anything in return.

THAT is the definition of a true friend. Helping and caring for someone and being there without any expectations or desire for a reward or returned favor. That is the definition of you.

You are selfless. You are a wonderful person. You are just what I needed, but never thought I’d find again due to my maladies.

I am very lucky that I have a great husband who helps me with everything. But it is also nice to have some good friends. Friends like you. To laugh with, to spend time with, to grow with, to become better people with.

I had almost given up hope that I would find good friends in my new home state. After my many ailments, I thought it would be impossible.

But there you were, walking slowly but surely by my side. Maybe you saw a glimmer in my eye of what I once was- active, funny and spontaneous. Maybe you got brief hints of what my personality truly is, when free from the constraints of pain and sickness.

In a world where many people are focused upon material things and influential people, you choose not to be. You can see past all of that, and get right to the heart of the matter. You were able to see what was in my heart.

I can’t begin to tell you how much you mean to me, and to my family. I can’t begin to thank you enough for how you have helped me, and for how you have accepted me and all of my limitations.

Having you around has brought some newfound joy to my life. Having you around has helped me recover. Having you around has helped me smile again.

A lot of people in their forties have to deal with at least one chronic illness. They are lucky if they have good friends around to help them adjust and get through it. But, making new friends when you have more than one debilitating condition is very difficult. It can be a very lonely time. Online support groups can be very helpful, but nothing takes the place of a nearby friend. One who is there to listen, commiserate with and to give you a hug when you need it the most.

Thank you for being my friend. I know that it can be hard sometimes because of all I am dealing with, but hopefully better health and good times are just around the corner. I look forward to sharing those times with you.

And as I struggle to fall asleep tonight, I will have a smile on my face because I know that kind people like you exist in this world.

You are just what the doctor ordered.

Poetologie ❤

 

 

 

 

 

 

 

Nothing’s Gonna Change Our World…Unless We Do

‘I read the news today…oh boy’ – Manchester looks like its been at war.  ‘A crowd of people stood and stared,’ they’d seen terrorism before. Beatles lyrics are currently racing around my head, music is my comfort today.

Twenty-two people killed, including children as young as eight years old. More than fifty injured. The distressing news just keeps coming. It’s getting so hard to hide my sadness and tears from my children.

How do I protect them from the news? How do I protect them from this increasingly dangerous world?

Images of the Newtown tragedy flash through my brain, as I see a mother cry for her missing daughter. People/children were once again going about their day. People/children were once again murdered.

With no warning. With no reason. With no emotion.

They are now gone. Their families are still trying to find them or find out if they are among the victims. Their families all have our sympathy, our thoughts, and our hearts. We hug our own children safe in the knowledge that they are okay today.

But what about tomorrow?

What new tragedies await all of us?

Today a bridge of pain connects us to Manchester, just like many bridges before. This pain seems unending in recent years. This pain is heartbreaking.

I wish it would stop.

I tell my anxious daughter a few details of the bombing, because I know that she will find out about it at school. I want her to hear my words first. I want her to see my face when I say this is a horrible tragedy, but this is far away, it will not directly affect you.

I never spoke to her about how I was in New York City on 9/11. How I walked for miles among traumatized ashen people. I never told her that her Aunt lost her best friend in the bombing of Pan Am 103, and worked in Tower One of the World Trade Center. I never told her how close to home tragedy has struck. But I have said those words of comfort to her before, about Newtown and a few other tragedies, because I needed to calm her fears.

My words which usually speak passionate truths were carefully edited, carefully cooled down to help her deal with the news. To help her deal with the fact that the safe little world in which she currently exists is shrinking. With each bomb blast, shooting or death from cold hands she will be unwound. Her idea of safety is slowly being liquidated to pay off the debt of her survival. Her artistic brush is forced to paint a picture of a world in frequent mourning, over mornings such as these.

When I was younger I frequently watched the news with my mom. I am not able to do this with my daughter, for it is too often filled with tragic headlines and scary events.

So instead I shield her from as much devastation as I can, surround her with love and comfortable things, and pray she will gain the strength to get through such difficult times.

I let her see me write blogs and poetry often, I tell her that getting out our emotions in a positive way is a blessing and a necessity. She hears the tap tap of the keyboard and the click click of the mouse as I pour out my feelings. I hope she always remembers these sounds. The sounds of subsistence, the sounds that help me get through my toughest times.

I am glad that she has her art to ease her mind. I hope that it always does. I hope that the stroke of her paintbrush can help her survive, thrive and put some color into this often gloomy world.

I often tell her that we should always help others when we are able to. That so many people need assistance, and that there is nothing wrong with asking for it. I tell her that it’s okay to pause her world in order to help someone in need.

After tragedies I feel helpless, sorrowful and weak. I wonder what kind of world we are leaving our children. But watching the kindness of strangers, bystanders and everyday heroes always lifts me up. These people make it possible to see the light in the darkness, the way through the pain.

I want to be one of these people. I am trying to teach my children to be like these people. The light-bringers, the change-makers, the bastions of hope. People who see others as equals and worthy of compassion. People who feel it is our duty as citizens to help lift others up, because they know we will all fall down at some point in our lives.

Manchester needs us now. The world needs us now. We must take a long look in the mirror of truth, and put an end to our apathy. I have been looking in this mirror for years, I am ready to make a difference. I realize that it all starts with me.

And as the tears flow from the sights and sounds of a city that’s an hours train ride from Liverpool, I know that nothing’s gonna change our world – unless we do.

Kathy ❤

Poetologie

 

To My Future Mommy: From Your Unborn Child

I may just be a very distant thought in your mind, or I may be close to being created or born.

Whatever point in your life you are at, please sit down and listen to what I have to say.

Please think of me when you choose your lovers, your partners, your spouse. They may become my Daddy someday. They may become my greatest joy, or my worst nightmare.

I will require a whole lot of care, patience and love. Please find someone who is kind and who treats you well.

Please choose someone who respects you and knows how amazing you are. Someone who walks beside you, who knows how to comfort you, who truly loves you. That love will greet me, it will keep me warm just like an amazing soft blanket.

A world without love is a dark, depressing place. Please think about what kind of world you want to bring me into. Please let it be full of love. I don’t need many material things, but I do need you to be happy, my special Mommy.

Please do not stay in a situation where you are being abused, for that will become my destiny. That will become my living hell. That will become my prison, one that I will be unable to escape from. I am an innocent child, I deserve better.

According to the National Children’s Alliance, approximately 700,000 children are abused annually, with about 1,670 of them dying from abuse and neglect.

I do not want to be one of them.

Please understand that any abuse is not your fault. Please understand that there is someone out there who will listen and help you. Please seek them out, and make a plan to leave any abusive environment.

You do not deserve that kind of life and neither do I. You are a good person, you have great worth and deserve to be happy.

PLEASE RUN, DO NOT WALK, FROM ANY ABUSER.

Please take the time to heal your wounds. Please don’t give up. Please continue to walk a new path toward happiness and self-love.

I know it won’t be easy, but I promise it will be worth it.

You may be my future Mommy. Please set yourself free.

And, by doing so, you will prove how much you really love me. You could not bare to bring me into this world and see me abused.

So, you walked away.

And now we are both free.

I cannot wait to meet you, my incredible, brave Mommy. I cannot wait to hear your voice. I cannot wait to be in your arms.

I love you Mommy, and I thank you for all you have done before I was ever even born.

 

Kathy ❤

Poetologie

You can find help here at The National Domestic Violence Hotline:

http://www.thehotline.org/

Or at The National Coalition Against Domestic Violence:

http://www.ncadv.org/

A Letter to My Children on Mother’s Day

I will always treasure every moment
I spent with you dear child
you are my baby and will always be
through many moonlight miles

I hope your days are always filled
with more happiness than you can accrue
and when I am no longer here
the moonbeams will send my love to you

Dear Children,

While you were in my belly I thought a lot about being a perfect mother. I dreamed of you under a starry sky and a bright full moon. I felt like I had been waiting my whole life for you, and I wanted to make sure you were happy. I pictured being Martha Stewart in the kitchen, having a house worthy of Better Homes & Garden magazine, and endless days of laughter, fireflies and fun.

When you arrived I knew the true meaning of love, and wanted to fulfill these goals more than anything.

What I didn’t know then was that I would not accomplish many of these objectives due to Chronic Illness, Lyme Disease and Anxiety. These dreams slowly drifted away as the pain increased, my brain got more foggy, and my strength diminished.

Though I knew that there was no such thing as a perfect mother, I wanted to be as close to perfection as possible. I set the bar very high, and I could never come close to that goal.

You are my little moonbeams, and I prayed to the moon for your forgiveness.

I read you books when I could, played games when I could, and took you to the park when I was able. I walked many moonlight miles with you, I would walk anywhere with you. I cooked you nice meals, and baked awesome allergy friendly treats as often as possible. I watched the sprinkles fall from your fingers, just like I watched the rapid passage of time.

I thought that despite my health issues, life sure is very sweet.

I would destroy the bar I set, and set a new one. This one would focus more on love than longevity, and more on feelings than frequency.

I would learn to enjoy whatever time we had together, and make memories that would last us a lifetime.

I knew that no matter what, I had already accomplished my greatest goal, bringing two incredible children into the world.

You are incredible.

Never forget that.

You show compassion when others are in pain, you hold your little umbrellas up to me to shelter me from the rain. You sit at the buddy bench with those who need a friend, you live your lives with joy and kindness that certainly does transcend. You help plant our garden with seeds of hope, you help me get by, you help me cope. You are as peaceful as little doves, have taught me the meaning of unconditional love. You are more special to me than words can say, and I will love you til’ my dying day.

I am so blessed to have you in my life.

I am sorry for my shortcomings, or for anything you have missed due to my illnesses and anxiety.

But I am not sorry that you failed to miss what the meaning of life is.

Being kind and true to yourself. Being able to put others in need before yourself from time to time. Spending as much time as possible with those you love. Never taking them for granted, never forgetting to tell them how much you care.  Love yourself, others and the environment. Never stop growing your mind, your heart, your soul.

I am so proud of you.

I am so happy that I get to spend Mother’s Day with you.

There is no one else I’d rather be with. There is no one else like you.

Thank you for all of the joy you have given me, and continue to bring to my life. I hope all that joy comes back to you two-fold.

I hope you will always remember what I have taught you.

Always live your life to the fullest.

Always remember how much I love you.

Always remember that that light that shines within you is greater than the light of any moon.

 

 

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Today I’ll Take Care of You: A Letter to My Family

It is a quiet Saturday morning in April. Rain falls softly outside, and the streets are covered with cherry blossom petals. Though all of you are sick with a virus, it is a good day.

Today I am able to take care of you for a change. Today I feel okay. I have the strength to make you some eggs, toast and tea. I’ll bring them to you in bed, and plant a gentle kiss on your forehead.

Today I will make some of my homemade tomato sauce that you love, and its magnificent aroma will fill the air. I will bake those nut-free vanilla cupcakes that you’ve been asking me to make for months. We will play Scrabble for hours since my brain is less foggy. We will cozy up on the couch and watch a great family movie.

I will be the mom/wife that I want to be every single day. The mom/wife that is not too sick to care for you, to cook for you, to be present for you, to explore the world with you. I will cherish this day, and pray for many more like it.

My many chronic conditions include Asthma, Lyme Disease, Fibromyalgia, Interstitial Cystitis, Endometriosis, Anxiety and Pre Menstrual Dysmorphic Disorder.

Any one of these conditions are enough to make life difficult to manage and cope with, but together they are often debilitating.

You see me wince with pain, so you help dry my tears. You see me tired and hungry so you bring me food. You see me unable to do chores so you help do them for me. You see me suffer, so you bring me my medicine.

What you don’t realize is that you provide the best medicine in the world. The medicine I need the most.

Love.

You provide it in daily doses of hugs, teaspoons of tenderness, and soothing scripts.

There is no better prescription for happiness. You make the tough days tolerable, the painful days palatable, and the crazy days comforting.

You are there for it all, and help me get through the unavoidable rain. You rarely complain, you just want to help me feel better.

I appreciate every single thing you do for me. I appreciate all of the sacrifices you make. I appreciate your constant companionship.

It is nice to not have to feel so alone in this long journey of chronic illness. In this long journey of life.

It is nice to have all of you by my side. My sweet family. I love you more than words can say.

Today I’ll take care of you.

Today I promise to keep fighting to get better so that we will have many more days together in sickness and in health.

Today it is my turn to provide you with some comfort, warmth and unconditional love.

Rest your weary heads.

Mommy is here.

And I will be here until the last cherry blossom petals wash away.